Planeta bolilor rare

Data	Title	Autor	Fișier audio OFFLINE	Conţinut
11/29/2017 - 13:00	The Planet of Rare Diseases - The Patient Access Partnership	Dan Alexandru		Asculta emisiunea aici
11/22/2017 - 13:00	The Planet of Rare Diseases - Lilyana Chavdarova, PACT Programme and Policy Coordinator	Dan Alexandru		Asculta emisiunea aici
11/15/2017 - 13:00	Planeta Bolilor Rare	Dan Alexandru	2017-11-15-PBR.mp3 (28.84 MB)	THE PLANET OF RARE DISEASES - LAUNCH OF THE EUROPEAN NETWORK OF PARLIAMENTARY ADVOCATES ( PART III )
11/08/2017 - 13:00	The Planet of Rare Diseases - Launch of the European Network of Parliamentary Advocates ( part II )	Dan Alexandru		Asculta emisiunea aici
11/01/2017 - 13:00	The Planet of Rare Diseases - Digital Academy, Helping PA's to get Social	Dan Alexandru		Asculta emisiunea aici
10/25/2017 - 13:00	Planeta Bolilor Rare	Dan Alexandru	2017-10-25-PBR-EU advocacy network.mp3 (23.4 MB)	Planeta Bolilor Rare The network of Parliamentary Advocates for Rare Diseases will help tackle these challenges by fostering cross-border EU collaboration. RD patients' challenges raise important questions as to what more the European Union could do to generate further progress or to eradicate inequalities in research, access to medicines, and health and social care between and within Member States.
10/18/2017 - 13:00	The Planet of Rare Diseases - Denis Costello, Eurordis Web Communications Manager	Dan Alexandru		Asculta emisiunea aici
10/11/2017 - 13:00	Planeta Bolilor Rare	Dan Alexandru	2017-10-11-PBR-Barbara Anridia.mp3 (26.97 MB)	Planeta Bolilor Rare brings today Barbara Poli from Italy. She is representing patients with Aniridia in Europe as a vicepresident.
10/04/2017 - 13:00	The Planet of Rare Diseases - The Joint Action For Rare Diseases	Dan Alexandru		Asculta emisiunea aici
09/27/2017 - 13:00	The Planet of Rare Diseases - The National Center for Rare Diseases in Italy	Dan Alexandru		Asculta emisiunea aici