Tanya Collin-Histed became involved in the Gaucher world in 1996 when her daughter Maddie was diagnosed with Type 3 Gaucher disease. A year later she became a Trustee for the UK Gauchers Association and started to support patients and their families with Type II and III Gaucher Disease through family conferences information booklets and proving friendship and emotional support.

Tanya has been the part time CEO of the IGA since 2008 and underpins all of the activities of the IGA from their UK office. Tanya’s main responsibilities within the IGA are supporting patients globally to access treatment through compassionate programmes in partnership with Pharmaceutical Companies and supporting evolving patient’s groups in countries across the globe.