Today, at the planet of rare diseases  we will talk about data protection and the importance of data sharing in rare diseases and will listen to the presentation of Sandra Courbier from EURORDIS at the ECRD Conference in Viena.We all know that progress is always based on previous work. Scientists have a responsibility for communicating research results and patients need to be informed.  Communication (sharing) is an essential part of research . All stakeholders (policy makers, general public) should be aware of the value of scientific research as health is a common good.  We live in a "global" world  and avoiding duplication allows to reduce waste.