Planeta bolilor rare

Data Title Autor Fișier audio OFFLINE Conţinut
The Planet of Rare Diseases - The Patient Access Partnership Dan Alexandru

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The Planet of Rare Diseases - Lilyana Chavdarova, PACT Programme and Policy Coordinator Dan Alexandru

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Planeta Bolilor Rare Dan Alexandru 2017-11-15-PBR.mp3

THE PLANET OF RARE DISEASES - LAUNCH OF THE EUROPEAN NETWORK OF PARLIAMENTARY ADVOCATES ( PART III )

The Planet of Rare Diseases - Launch of the European Network of Parliamentary Advocates ( part II ) Dan Alexandru

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The Planet of Rare Diseases - Digital Academy, Helping PA's to get Social Dan Alexandru

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Planeta Bolilor Rare Dan Alexandru 2017-10-25-PBR-EU advocacy network.mp3

Planeta Bolilor Rare

The network of Parliamentary Advocates for Rare Diseases will help tackle these challenges by fostering cross-border EU collaboration. RD patients' challenges raise important questions as to what more the European Union could do to generate further progress or to eradicate inequalities in research, access to medicines, and health and social care between and within Member States.



The Planet of Rare Diseases - Denis Costello, Eurordis Web Communications Manager Dan Alexandru

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Planeta Bolilor Rare Dan Alexandru 2017-10-11-PBR-Barbara Anridia.mp3

Planeta Bolilor Rare brings today Barbara Poli from Italy. She is representing patients with Aniridia in Europe as a vicepresident. 

The Planet of Rare Diseases - The Joint Action For Rare Diseases Dan Alexandru

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The Planet of Rare Diseases - The National Center for Rare Diseases in Italy Dan Alexandru

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