Planeta bolilor rare
Dan Alexandru



The Serbian regional conference on rare diseases “Caring for Rare” took place online this year. This conference managed to bring together a great number of representatives from the national alliances for rare diseases, patient organisations, medical workers, students, stakeholders, representatives from the pharma industry. With this we have shown the importance of the discussions on the rare diseases and exchange of the ideas and best practices. Dorica presented NoRo Center as a Best practice example for holistic care. We hope that in the future we will have the opportunity to further develop our cooperation, and together work on the improvement of the lives of people living with rare diseases. Today, we invite you to listen the presentation of Ukrainian National Alliance.