The Planet of Rare Diseases - David Page -

Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

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In many countries around the world, people with hemophilia do no have access to adequate care. They are held back from reaching their potential as human being and they suffer great pain and run a high risk of crippling. Death at a young age is not uncommon. In some countrie, where hemophilia care has been well-developed, authorities are cutting back resources in Hemophilia Treatment Centers and high-quality care is endangered. It is the orle of the National Member Organizations of the World Federation of Hemophilia to work with governments and health authorities to raise the level of care so that people with hemophilia can live healthy lives. 

David Page spoke ar RDI Cord, about this subject.