The Planet of Rare Diseases - Interview with Vlasta Zmazek about Debra

Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

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Today, we will talk  about Epidermolisys Bulosa and the activities organized by their organizations. In fact we will talk about 2 big international events: 

  1.  The International EB Awareness Week (IEBAW) takes place in the last week of October each year, with EB Awareness Day being on the 25th of October.

  2. The DEBRA International Congress which is an annual event that first took place in Strasbourg, France in 1992.