Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru
Rare Diseases International (RDI), EURORDIS and the NGO Committee for Rare Diseases organized the Rare Disease Day Policy Event launching the call for a UN Resolution to Address the Challenges of Persons Living with a Rare Disease (PLWRD)
On 4 March 2021, participants from 83 countries joined the event which brought together civil society organisations, persons and families living with a rare disease, the private sector, UN Representatives, UN Member States and policy-makers. Today, we would like to share with you one of the RDI messagea UN Resolution to Address the Challenges of Persons Living with a Rare Disease. Let's listen together!