Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

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Rare Diseases International (RDI), EURORDIS and the NGO Committee for Rare Diseases organized the Rare Disease Day Policy Event launching the call for a UN Resolution to Address the Challenges of Persons Living with a Rare Disease (PLWRD)

On 4 March 2021, participants from 83 countries joined the event which brought together civil society organisations, persons and families living with a rare disease, the private sector, UN Representatives, UN Member States and policy-makers. Today, we would like to share with you one of the RDI messagea UN Resolution to Address the Challenges of Persons Living with a Rare Disease. Let's listen together!