Yesterday, 23rd February, EURORDIS organised the Final Conference of the Rare2030 Project with 700 participants. It's the time for the European institutions to adopt a new policy framework for rare diseases in Europe and Rare2030 will contribute to this. It's the time!
Rare2030 is a foresight study that gathers the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will lead us to a better future for people living with a rare disease in Europe.
We had the opening remarks from Stella Kyriakides (Commissioner for Health), Olivier Véran (french Minister of Health), Cristian Bușoi, România and the closing remarks from Jan Blatny (Czech Minister of Health).