The Planet of Rare Diseases - Rosa Sanches de Vega -

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Planeta bolilor rare
Data
Autor
Dan Alexandru

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Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there's often only a small group of individuals. Get to know aniridia.

Aniridia Europe, the federation of European aniridia associations and representatives has been founded to change this situation. As of March 2019, the federation includes 12 national associations as well as support groups and contact persons in 20 other European countries.

National Associations are Key sais Rosa Sanches de Vega - president of Aniridia Europe that talked with Dorica Dan at EULAR Conference in Madrid this year in June.