Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

1564564916898906.jpg


The largest and most significant gathering of rare disease advocates from patients to policy makers from gene manipulators to AI gurus from local support groups to international research networks coming together to Create a Vision for Rare Disease in the 21st Century and Develop Action Plans from Local to Global 

Hosted by Rare Disease International & Canadian Organization for Rare Disorders (CORD). Dorica Dan attended the conference and presented the progresses realized by Romanian National Alliance for Rare Diseases.

Today, we will listen the presentation from Foundation for Rare Diseases Taiwan.