The Rare2030 Knowledge Base has been developed with the input of the nearly 200 members of the Panel of Experts and covers their broad range of expertise in topics relevant to rare disease policy. The results have been presented at Rare2030 final conference on 23 February and NoRo was one of the case studies presented on the topic of holistic care.

Holistic care’ covers the 360° spectrum of the health, social and everyday needs of people living with a rare disease and their families.