Yann Le Cam is a patients’ association advocate who has dedicated 20 years of professional and personal commitment to health and medical research nongovernmental organisations in France, Europe and the United States in the fields of cancer, HIV/AIDS and rare diseases.

Yann served as Director General of the AIDES Fédération Nationale from 1992 to 1998. He served as a Special Advisor to the French Neuromuscular Association (AFM) from 1998 and founded the Alliance Maladies Rares, a national umbrella organisation of over 150 patient associations in France. Yann was one of the founding members of the European Organisation for Rare Diseases in 1997 and contributed to the adoption of the European Regulation on Orphan Drugs in December 1999. He serves as vice chair of the Board of Directors of the International Alliance of Patients Organisations (IAPO) in London.

In this challenging time, young people have been a voice for people with rare diseases across the world, advocating for their rights and shaping the future of our community

Letțs listen the message from Yann Le Cam, Chief Executive Officer of EURORDIS-Rare Disease Europe, to young patient advocates on the occasion of #RareDiseaseDay