The Planet of Rare Diseases - 3rd Multi-Stakeholder Symposium Brussels

Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

1552462868691202.jpg



Today, at the Planet of Rare Diseases we will listen to Victoria Hedley Rare Disease Policy Manager at New Castle University, John Walton Muscular Dystrophy Research Centre, MRC Centre for Neuromuscular Diseaseº Institute of Genetic Medicine. She was presenting the breakout session's results of the debate at the 3rd Multi-stakeholder symposium on improving patients' access in Brussels for Rare Diseases Day.