Rare Diseases Europe has recently launch the campaign for a European Action Plan for Rare Diseases. THE FUTURE OF 30 MILLION PEOPLE  While great progress has been made thanks to scientific advances and efforts at EU and national levels, too many people living with a rare disease face unmet needs and inequities in accessing a diagnosis, treatments and care, leaving them marginalised in society. There is currently no overarching action for rare diseases at European level, and policies have not kept pace with new technologies. Join EURORDIS and the rare disease community in the #30millionreasons campaign for a new EU Action Plan on rare diseases, that will leave no one behind by 2030. 

There are 30 million people living with a rare disease in Europe. Every person living with a rare disease is a reason for Europe to have an action plan for rare diseases that leaves no one behind by 2030.