Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru
We all know that progress is always based on previous work .
Scientists have a responsibility for communicating research results and patients need to be informed. Communication (sharing) is an essential part of research .
All stakeholders (policy makers general public) should be aware of the value of scientific research as health is a common good. We live in a “global” world and avoiding duplication allows to reduce waste. The new trend is to be open and to protect people:
Open sharing of research activity, Open online information, Open Access journals Open peer-review Open data sharing , Open to patients/society Open in disclosure conflicts of interest Open online courses.