A disease is not simple if your child has a rare condition, symptoms that match multiple conditions, or symptoms that don’t really fit into a single category. This is a journey with multiple stops. You might wait a long time for one diagnosis or even get many along the way. The good news is that you are not alone: parents struggling with similar issues have formed support networks. New conditions are identified every day; one of those might help doctors reach a diagnosis for your child. Today, at the Planet of Rare Diseases we are exploring the topic of parenting in rare disabilities.