The Planet of Rare Diseases - Rare Disabilities -

Planeta bolilor rare
Dan Alexandru



Lieven is the Secretary General of the International Federation for Spina Bifida and Hydrocephalus and the chair of both Child-Help Belgium and Child-Help International, a charity dedicated to help children with SB/H in developing countries. In those capacities he is a global advocate for the rights of persons with the disabilities while engaging actively in primary prevention of these impairments. He is a board member of the Food Fortification Initiative , of the International Disability Alliance , and a founding partner of the global alliance for Spina Bifida and Hydrocephalus PUSH!, and Child-Help in Belgium, Germany, France and the Netherlands. A background in Architecture and Business Administration.